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Understanding the Long-Term Care Ombudsman Program

CHICAGO, IL – Under the federal Older Americans Act (OAA), each state must have an Ombudsman Program that addresses complaints and advocates for improvements within the long-term care system. Every state has an Office of the State Long-Term Care Ombudsman, headed by a full-time State Long-Term Care Ombudsman who directs the program statewide. Across the nation, staff and thousands of volunteers are designated by State Ombudsmen as representatives to serve residents directly.

According to the Administration on Aging (AoA)/Administration for Community Living (ACL), the network has nearly 6,000 volunteers certified to handle complaints and more than 1,300 paid staff; nationally, the Ombudsman program investigated over 198,000 complaints in 2019 alone; and the group has provided information on long-term care to nearly another 425,000.

When someone living in a long-term care facility doesn’t have family or friends who visit them regularly, Regional Ombudsmen or Ombudsman Volunteers can be the only people available to identify a problem, report care concerns and act as a voice for those who have been neglected, forgotten or abused. Ombudspersons are advocates for residents of nursing homes, board and care homes, and assisted living facilities. They serve as a valuable resource to families, residents and staff to provide information about finding a facility and what to do to receive quality care. Most importantly, they are trained to resolve problems.

Some Frequently Asked Questions About the Ombudsman Program in 2021

The following are frequently asked questions and answers provided by the National Long-Term Care Ombudsman Resource Center:

Q: Who does the Ombudsman program represent?

The Ombudsman program’s mandate is to represent the residents and assist in their direction. The OAA requires the Ombudsman program to have resident consent before investigating a complaint or referring a complaint to another agency. In addition, when someone other than the resident files a complaint, the ombudsman must determine, to the extent possible, what the resident wants.

Q: What happens after I bring a concern to the Ombudsman program?

Suppose someone other than a resident contacts the Ombudsman program with a complaint. In that case, the ombudsman will visit the resident to see if the resident has similar concerns and wants to pursue the complaint. The ombudsman will explain the role of the program, describe the complaint investigation process, share information about residents’ rights, ask about the resident’s quality of life and care, and seek to understand the resident’s capacity to make decisions. As a result, many residents, even residents with dementia, can express their wishes.

If the resident wants the ombudsman to act on the problem, the ombudsman will investigate the complaint and continue communicating with the resident throughout the investigation process. If the resident cannot provide consent, the ombudsman will work with the resident representative or follow program policies and procedures if the resident does not have a representative.

Q: What types of complaints does the Ombudsman program investigate?

Ombudspersons handle a variety of complaints about the quality of life and care. Not all complaints are about the care provided by a facility, and some complaints are about outside agencies, services, or individuals (i.e. Medicaid or Medicare benefits). They can also receive and respond to complaints from individuals other than the resident (i.e. family members) but still need resident permission to investigate or share information.

Q: Do ombudspersons investigate complaints involving allegations of abuse, neglect, and exploitation?

Yes. The Ombudsman program investigates and resolves complaints that “relate to action, inaction or decisions that may adversely affect the health, safety, welfare, or rights of the residents,” and that includes complaints about abuse, neglect and exploitation.

Ombudsmen are directed by resident goals for complaint resolution and are limited by federal disclosure requirements. Therefore, the Ombudsman program’s role in investigating abuse allegations is unique and differs from other entities such as adult protective services and state licensing and certification agencies.

Ombudsman programs attempt to resolve complaints to the residents’ satisfaction (including those regarding abuse) and do not gather evidence to substantiate that abuse occurred or determine if a law or regulation was violated to enforce a penalty.

If necessary, with resident consent or permission of the State Ombudsman, if the resident can’t consent and does not have a legal representative, the ombudsman will disclose resident-identifying information to the appropriate agency or agencies for regulatory oversight; protective services; access to administrative, legal, or other remedies; or law enforcement action about the alleged abuse, neglect or exploitation.

Q: Is the Ombudsman program required to report allegations of abuse?

There are strict federal requirements regarding the disclosure of the Ombudsman program information. For example, resident-identifying information cannot be disclosed without resident consent, the consent of the resident representative, or a court order. Therefore, these disclosure requirements prohibit Ombudsman programs from being mandatory reporters of suspected abuse.

Q: How do I find more information about the Ombudsman program and contact an ombudsman?

Visit the National Long-Term Care Ombudsman Resource Center (NORC) website (www.ltcombudsman.org) to learn more about the program.  To locate an Ombudsman program, click on “Visit Our Map.”

Working with the Illinois Long-Term Care Ombudsman Program

The individuals working through the Illinois Long-Term Care Ombudsman Program are crucial in protecting the rights of residents who are disabled, abused, neglected and those without family and who may have a hard time advocating for themselves. Ombudsmen oversee assigned regions across the state and stay focused on these six primary goals.

  1. Advocating to improve the quality of care and quality of life for residents of long-term care facilities in Illinois.
  2. Empowering seniors and adults with disabilities to self-advocate.
  3. Providing information to residents about residents’ rights, long-term care options, supports and services in nursing facilities and the community.
  4. Investigating complaints and concerns. Ombudsmen will work to resolve complaints to the satisfaction of residents.
  5. Listening to understand an issue from the resident’s perspective.
  6. Maintaining confidentiality. Ombudsmen may not discuss or disclose any information without the individual’s permission.

Nearly 20 regional Ombudsmen and Deputy State Long-Term Care Ombudsmen and consultants, dozens of volunteers, and accompanying provider agencies support the state of Illinois and work to uncover the more complex and challenging issues plaguing nursing homes today. This might include insufficient staffing, medication errors, wrongful eviction, infectious disease concerns related to COVID-19, and neglect and abuse claims.

Since Ombudsman services are free to most, current nursing home residents, family members, and friends can contact them without financial stressors. In Illinois, the Ombudsman program services are available free of charge to:

  • Person(s) 18 or older who is/are either a current resident, a prospective resident or a former resident of a long-term care facility;
  • Friends and relatives of persons who live in long-term care facilities;
  • Long-term care facility staff members and administrators with resident-related concerns;
  • Individuals and families who are considering long-term care facility placement as a long-term care option;
  • The community-at-large; and
  • Other interested groups are concerned about the welfare of residents of long-term care facilities.

Ombudsman Program contact information is available through the Illinois Department of Aging and categorized by regions and counties served.

Contacting a Local Ombudsman in Your Community

Several trained volunteers identified through the Long-Term Care Ombudsman Program also advocate for working through common resident complaints related to food, room accommodations and facility accessibility. Still, they are also present to listen to residents while having regular friendly and trusted visits. Ombudsman Program volunteers are beneficial to residents who may not have family or friends who visit them often as these residents are more likely to be abused and neglected.

Please know in advance that Ombudsman programs do not:

  • Conduct licensing and regulatory inspections or investigations;
  • Perform Adult Protective Services (APS) investigations; or
  • Provide direct care for residents.

Contacting an Illinois Injury Lawyer to Protect the Rights of Long-Term Care Residents

The Illinois Ombudsman Program was mandated under the Federal Older Americans Act and the Illinois Act on Aging.  While Ombudsmen can play a significant role in advocating for those in nursing homes, some situations in violation of those Acts will require the attention of an experienced attorney. The nursing home lawyers at the Dinizulu Law Group are here to guide you as we seek justice and fair compensation. Fill out this form or call us at (312) 384-1920 to learn more about your legal options today.

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